One of the charity organisations which sponsors or undertakes research is situated at Langham House West, Mill Street in Luton, Lu1 2Na. It's named Rett Uk. One of this organisation's main objectives is to to promote the care, welfare, treatment and advancement of people with rett syndrome to support, sustain and assist those caring for people with rett syndrome to promote greater understanding of rett syndrome to promote research into the causes, effects and methods of preventing rett syndrome, and to disseminate or publish the results of such research . It's run by Rett Uk. After being issued with a number 1137820, it began its activity providing support with the advancement of health or saving of lives, as well as with disability. You can contact this institution by telephone:01582 798910, e-mail: info@rettuk org or via their website www rettuk org. Its governing document is Memorandum and Articles Of Association Incorporated 9 August 2010 . In addition rett syndrome is the most common cause of profound and multiple disability in females a complex neurological condition genetic but not usually hereditary, it can occur in any family we offer support, advocacy and advice to all those affected we fund research to improve diagnosis, ameliarate symptoms and improve the quality of life of the thousands of people living with rett syndrome today .